'Trevor's Law' was passed to track cancer clusters. Its supporters ask why it's taken so long.

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Federal legislation meant to help track and investigate suspected cancer clusters has not done either since its inception five years ago, advocates say.

Congress allocated additional money for"Trevor's Law” in fiscal years 2020 and, bringing the total to $4.5 million. The office of Sen. Jeanne Shaheen, D-N.H., a member of the Senate Appropriations Committee, said she is seeking a funding increase for fiscal year 2022.

"Challenges include the availability of subject matter experts at the federal, state, local, and community levels — many of whom have been responding to the COVID-19 pandemic," according to the CDC. Charlie Smith, the co-founder of the Trevor's Trek Foundation, with her son, Trevor Schaefer, and Sen. Mike Crapo, R-Idaho, with the signed bill in 2016.This month, Susan Wind of Florida received an email to take part in a 90-minute focus group sponsored by the CDC and an agency within the federal Department of Health and Human Services. But when she went to fill out the online registration form, the link didn't work.

In the absence of a government-funded study, Wind raised $110,000 to enlist a team of scientists to test the groundwater, soil and air.

 

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