Mum pays for own cancer treatment after NHS stop drug trial in lockdown

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'It feels like my human rights have been taken away from me'

‘I’ve got the boys to live for and I’m not ready to die, you know. I just feel that the NHS has deprived me of my treatment. It feels like my human rights have been taken away from me.

In November 2019, doctors found the cancer had returned in her liver which meant she had to have part of it removed in February this year.Carol said: ‘After the operation the surgeon told me my liver was very clean – ‘pristine’ were his exact words. The trial was due to be funded by the NHS in Liverpool at a total cost of £160,000, broken down into four treatments of £40,000 each. But then, when the pandemic started, many cancer trials in England were paused.Desperate to continue with the trial, Carol was offered the chance to go private and cashed in her entire pension to fund the first round of treatment.

Emlyn Samuel, head of policy for leading cancer charity Cancer Research UK, said that the Government’s decision to pause many cancer trials at the peak of the pandemic meant thousands of patients are likely to have missed out on experimental treatments.

 

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